June

When it became clear that the muppets were not going to make their August due date, I decided a July birthday would be great. Upon my final admittance to the hospital, I had modified my expectations and was just desperate to get through May.

“June babies!” I insisted. They have to wait for June, I prayed. They are June babies.

The night of May 28, I called the NICU to see how the muppets were doing. (Since I was still recovering from the c-section I couldn’t go visit them just yet.) “This is June, I’ll be Search’s primary nurse so I’m sure we’ll get to know each other well. The boys are doing great.”

June. One of their nurses. I had prayed hard for June babies; apparently I was not specific enough.

Thanks to our team of amazing nurses – June, Anne, Margaret and Susan among them – our boys are now home. The muppets will grow up; they’re already getting bigger. But to most of our nurses, Search and Destroy will forever be tiny babies.

Once the boys grew big enough to move out of the closed isolettes, they started wearing clothes. I have always said that I will never dress my twins alike. They are not identical. They are very much two individual people. This saddened Nurse June. She was determined to see them dressed alike. For weeks she and Nurse Susan have been threatening to get little identical outfits for them and surprise me when I arrive to visit.

Well, the boys are home now – her efforts thwarted. But since fate dealt us such an ironic blow as to have June be the nurse for my May babies, the photo below is the one and only time you will see such a sight.

June, Anne, Susan, Margaret, Jennifer and the rest of the NICU team: Thank you for helping us bring our boys home.

One time only.

The Circus Comes to Town

Ladies and Gentlemen! Boys and Girls! Step right up. Come and see the amazing million dollar miracle muppets!

Cuter ex-preemies you will not see.

Together Again

Only 73 days it took both boys to triumph. They have shunned ventilators; defeated breathing and feeding tubes. Tripling their weight in two and a half months, these chunky monkeys are not to be missed!

This almost surreal experience of having both twins together again has been months in the making. In January, they shocked their parents by being multiples. In March, they announced a future filled with blue. In April, they began plotting the great escape. In May, they arrived at 27 weeks and 4 days.

Now, this August 9, both boys are home!

After 10.5 weeks in the hospital following Mom’s six weeks on and off in the hospital the two have undoubtedly created one impressive hospital bill. Well worth every penny. Fattened from two pounds to almost seven. Stretched from only a foot long to 19 inches. These two and a half month old babies correct their gestational age to 38 weeks today. Mere newborns!

Stubborn and fighters. The million dollar miracle muppets are home. They’re both home. Finally. The experience of finally being all together as a family is surreal.

We're all home.

Step right up. Come and see the amazing million dollar miracle muppets – living with a finally full-time mommy and daddy.

(Please remember not to touch the muppets. Previously compromised systems are still developing into healthy big boys.)

Home

Words fail me.

Welcome home Destroy Anthony.

Born:                                   Welcomed Home:

May 28, 2010                      August 6, 2010
1:32 p.m.                               2:18 p.m.
2lbs, 3oz                               6lbs, 7oz
12.2 inches                          17.8 inches

Lyrics to Daughtry’s Home
I’m staring out into the night,
Trying to hide the pain.
I’m going to the place where love
And feeling good don’t ever cost a thing.
And the pain you feel’s a different kind of pain.

I’m going home,
Back to the place where I belong,
And where your love has always been enough for me.
I’m not running from.
No, I think you got me all wrong.
I don’t regret this life I chose for me.
But these places and these faces are getting old
So I’m going home.
Well I’m going home.

The miles are getting longer, it seems,
The closer I get to you.
I’ve not always been the best man or friend for you.
But your love, remains true.
And I don’t know why.
You always seem to give me another try.

So I’m going home,
Back to the place where I belong,
And where your love has always been enough for me.
I’m not running from.
No, I think you got me all wrong.
I don’t regret this life I chose for me.
But these places and these faces are getting old.

Be careful what you wish for,
‘Cause you just might get it all.
You just might get it all,
And then some you don’t want.
Be careful what you wish for,
‘Cause you just might get it all.
You just might get it all, yeah.

Oh, well I’m going home,
Back to the place where I belong,
And where your love has always been enough for me.
I’m not running from.
No, I think you got me all wrong.
I don’t regret this life I chose for me.
But these places and these faces are getting old.
I said these places and these faces are getting old.
So I’m going home.
I’m going home.

Getting Discharged

Driving Away

Home!

Rooming In and Heading Out

Destroy is asleep. He’s lying on his tummy on Daddy’s chest.

We’re at the hospital again today. But today, we’re in a hotel-like room. It’s part of the NICU here, called the “Parent Sleep Room.” Funny huh? I wonder if they sense the irony that no parent will actually ever sleep here. Before a NICU baby graduates, parents are offered the opportunity to room-in; they spend the day with their kid – no monitors, wires, beeping or dinging. It’s meant to give paranoid parents the chance to practice. Yay, we’re a happy family but the nurses and doctors are just down the hall should anything go awry (or more likely, should parents suffer a panic attack).

Should all continue to go well, Destroy will graduate tomorrow. (I looked for a newborn size cap and gown. Wasn’t successful.)

Destroy Anthony was born 70 days ago at 2 pounds 3 ounces. He was so tiny. I didn’t even get to see him – all I got was a glance toward the Giraffe isolette as they wheeled him quickly down the hall to his Pod B6 home in the NICU. Most of the doctors repeatedly stated they thought Search would be the first muppet to break free. “Oh, definitely, he’ll be the first to go,” they’d say as they gestured toward Search.

Then 10 days ago, both muppets got their two-month vaccines. A series of three shots and that was it – instead of getting sick, Destroy broke out the big guns. I can imagine him thinking, “Oh, I am SO outta here before they stab me again!” He started eating all his food and breathing like a big boy.

We arrived at the NICU at 7:30 a.m., right after shift change. After saying hello to the boys and feeding a very hungry Search (he’s obviously not far behind), we put Destroy in a plastic wheely crib and rolled down the hallway. We quickly adjusted to having a mobile child – he’s got no strings to hold him down, he’s a REAL boy now (Pinocchio reference for any currently confused). And then we commenced staring at the child.

Destroy started out fussy and promptly conked out after an indulgent breakfast. We spent the next three hours staring at him as he slept contentedly in his bumble bouncer. He had formula for lunch and is now soundly back asleep on Daddy’s chest.

Nurse Susan and Nurse Anne (Destroy’s primary nurses for night and day shifts) will be sad to see him go. We’ll come back and visit.

Make way for muppets. Destroy is heading out with his brother not far behind.

Then

Now

Triple Threat

Our Little All-Stars

Our baby boys aren’t so little anymore. Today’s NICU update revealed that the muppets are six pounds.

I shall repeat that.

Our tubby little muppets are six pounds. I actually asked one of their doctors if they were getting a bit swollen – water retention perhaps. “No,” came the reply. “They’re just fat.”

Two and a half months ago, I was lying in a hospital bed praying for chubby babies. Two pounds sounded huge for 27-weekers. Search and Destroy have tripled in size. Instead of purple little aliens, we have the cutest babies in the NICU. (I may be biased.) Even the nurses and doctors continuously stop by the boys crib to comment on how big they’ve grown.

Today also marks 37 weeks as the twins’ corrected gestational age. They are officially full term babies. And that means they could possibly be home soon. We’re getting close – so very close.

Our oh-so-talented muppets are also just about three for three on NICU graduation criteria.

Regulate your own temperature.
Easy-peasy. They’ve been chillin’ at a brilliantly self-regulated 98.6 (give or take a degree) since the end of June when they hit a mere three pounds.

Look! No tubes!

Breathe all by yourself.
Neither muppet has a nasal cannula any longer – or any other breathing assistance apparatus. They still swing a bit when it comes to their oxygen saturation levels, but those swings are at much higher percentages. There are no more real apnea or bradycardia episodes occurring; the only issues take place occasionally during feedings. The doctor noted that they are not as concerned with minor de-saturations that occur during meals because we know precisely why they’re happening – a large nipple is stuck in the boys mouths. (Plus, they’re still breathing. Current episodes just involve shallow breathing.)

Today we were told they just want to watch for a couple more days. We’re talking homecoming dates in days now!

Just look at those chubby cheeks!

Eat all your food.
This requirement sounds like something I’ll be dealing with for many years as a parent. “Eat the rest of your dinner, Search.” “Just a few more bites please, Destroy.”

Destroy is a rock star in this arena. Both kids are now on the “discharge diet.” This consists of straight breast milk with two servings of higher calorie formula per day. Yesterday, Destroy woke up at 9:30 a.m. for his 10 a.m. breakfast date. A nurse in our pod let the boys nurse know that I’d be in soon to give Destroy his bottle. By 9:45 a.m., Destroy was screaming so loud that the nurses were begging someone to just hurry up and feed the child. Today, Destroy drank his milk so quickly and expressed great displeasure with me when I took the bottle away. Since he was still making overt mouthing motions, I tried giving him his pluggie. That was spit out right quick with a look that clearly stated, “There is no milk in that piece of plastic, Mom.”

Search is doing well too, he’s just not quite as interested as his brother. His culinary disinterest is what puts him a couple days behind his brother in terms of release dates.

Our next step is “rooming in.” We’ll spend a day or night in a hospital hotel room (yay, spending more time in the hospital). The boys will not have any monitors or medical staff hovering around. It will be just up to us to parent them – but that non-hovering medical staff will be right there should we need them (or panic and think we need them).

We’re hoping that we’ll have a baby home by the end of the week. Eat, breathe and stay regulated boys!

Noxious Odors

Destroy needs to poop.

We think the high calorie diet the NICU concocts to fatten up the babes is difficult to digest. Our poor little baby is struggling hard to process all his weight-gaining goodness. And he has apparently decided the entire NICU staff should accompany him on this journey.

Recently, Destroy has started to wail when his tummy hurts. It is heartbreaking to see him crying and not be able to fix it. He’ll scrunch up his little face, turn his head up to the side, hold his breath and try. Sometimes putting him on his tummy and rubbing his back helps calm him down a bit. I know when my tummy hurts I prefer to be curled up face down in the fetal position.

Now that we’ve moved down on the calories, Destroy’s feeling a bit better. He’s still not pooping to his preferred potential, but he’s finding some relief. Destroy is now gaseous. And Destroy is potent.

Back when the boys still lived in closed isolettes, we arrived one morning to find Destroy sans blanket. “I just couldn’t keep him covered when it smelled like that in there,” she apologized. Popular opinion at the time was that his apnea was due to Destroy holding his breath to avoid the foul odiferous fumes generated by his gastrointestinal discomfort. We all laughed – assuming our nurse was joking.

Now Destroy is much bigger. He is beginning to resemble a football due to the size of his stomach (one of his nurses also suggested he may bear resemblance to a frog). Last night, Jon was holding Destroy while he struggled with his tummy troubles.  Suddenly the nurse on the opposite end of the pod exclaimed, “Oh. My. God! Is that ALL Destroy?!”

It was.

And it wasn’t even a poop. Just gas. Several times we’ve changed his diaper because there HAD to be something in there.

Nope.

Whoever said newborn poops didn’t start to smell bad until they started eating big kid food was seriously misinformed. Perhaps this is our little ones revenge on the NICU for having to eat the sludge.

At the very least, I know Destroy feels better when he toots because every one, big or small, is followed by a mischievous little grin.

Visitors be forewarned. When you come to meet the muppets, you will be visiting a house with two small formula-added babies and two large plum-eating dogs. Enter at your own risk.

Don’t Chart That!

Happy two months to my little muppets! Sixty-one days down in the NICU, but we’re making progress. The last two hurdles to clear are a full five days with no As and Bs (apnea and bradcardias) and steady oxygen saturation and two full days of taking all their feedings via the bottle.

Mommy's Little Man

We’ve now reached that point where time has slowed down. We’re so close, but not quite there yet – or should I say not quite home yet. And every progressing day brings stronger feelings that they are MY children (with subtle overtones of “back off nurse”). We are eager to take on the life-changing experience of full parenthood.

This morning a nurse told us not to bother Search because they liked to let him rest. Jon was in process of changing a poopy diaper. This was the first time in two months someone had told us not to touch our babies without a very specific medial reason. (And as Search’s mommy and daddy, we’d made the executive parental decision that our child would rest better when not stuck in a smelly diaper.)

Naturally, Jon and I have grown incredibly close with them and feel that we are getting pretty good at reading their cues. This particular skill has been greatly enhanced by some of our favorite nurses who subscribe to the “they’re your babies – you deal with them” method of care. Yet because their regular nurses spend so much time with them, they’re part of our family right now too.

During their NICU stay the boys have amassed an awesome team of nurses who know them and their quirks as well as us. (Dear Search and Destroy’s regular night nurses – I’ve never met you, but I’m assuming you’re just as awesome as our day and evening nurses).

Destroy

Search and Destroy still swing. One of the neonatologists continues to call them the “Swing Boys” instead of the “Stream Boys.” But they’re recoveries back up to full oxygen saturation have become so much faster that the monitors are often up to half a minute behind. Last week, Destroy’s levels dipped low. A nurse unfamiliar with him rushed to his bedside and hurriedly started trying to stimulate him while frantically looking back and forth between a bemused looking Destroy and the offending monitor. Moments later, our nurse returned from her break. She peered into the crib and calmly noted, “He’s fine.”

“But I really don’t like those numbers!” the unfamiliar nurse retorted.

“So don’t look at the numbers,” our nurse suggested. “Look at the kid.”

When the boys swing during feedings, our nurses barely give us a second glance. They know the boys and they know us. They’ve made it clear when we’re visiting they rely on us to let them know if something is off. Jon and I have chosen to interpret this as a great sign of confidence.

Search

But a nurse who doesn’t know them often thinks of them as “the twins” or “the baby.” Our nurses know them as Search and Destroy. The nurses who don’t know them don’t know that they’ll immediately recover from a swing. A nurse who doesn’t know them doesn’t know if they have competent parents. And a nurse who doesn’t know them charts EVERYTHING. As we get closer to bringing them home, the slightest look of concern by an unfamiliar nurse prods exclamations of “Don’t chart that!” out of fear that it will ultimately delay homecoming.

It’s a vicious little circle since the reason our boys are doing so well is due to the conscientious team of nurses and doctors who don’t take any abnormality lackadaisically. Jon and I appreciate everything that the NICU staff have done for the muppets. And to Search and Destroy’s regular team of NICU family – we can’t thank you enough. You are amazing, informative and entertaining. And we can’t wait to be rid of you.

The muppets are scheduled to have a multitude of vaccines today. (What a way to celebrate two months on Earth…) So we’re happy to have all that additional help taking care of potentially tired, cranky, sore, sick boys.

Happy Birthday Brother

I was really hoping the muppets would be born today. Today is Uncle Paul and G.G’s birthday. I know the day is a bit crowded, but even Uncle Paul had said it would be fun to share.

Twenty-seven years ago Paul arrived early. Not three months early of course, but a couple of weeks. Mom woke up early, but ignored her symptoms because he wasn’t due yet. (Boy do I know that feeling!) Finally, she realized it would be exceedingly prudent to get her pregnant belly to the hospital ASAP.

Twenty-seven(ish) minutes later, I had been rudely removed from mud-pie preschool and had a new baby brother.

Mom called G.G. “Happy Birthday Mom. You have a new grandson.”

During the first few years, I wasn’t terribly thrilled with his presence. Periods of silence in the house would often be followed by the two of us trying to kill each other. How exciting that Search and Destroy have started fighting early. Search kicked his brother in the head while the two were in utero. Destroy laughs at his brother now when he has to have his nasal cannula replaced.

But then, inexplicably, as we got older Paul got less annoying. We traded baseball cards and played catch on summer evenings. (Sorry about that baseball through the back of the Volvo, Dad.) We entertained each other during long nights before birthday or Christmas. We talked about relationships and argued over whose turn it was to monopolize the phone. We fixed Mom’s computer and rolled our eyes at our parents’ general lack of coolness.

I know that someday the muppets will be rolling their little eyes at Jon and me. But I hope that they will think their brother is cool. And they’re certainly lucky to have such a cool uncle! (Even if I’ve always been a tad jealous that he gets to share such a special relationship with our Grandma.)

Brothers!

Five Pound Fashion

When the nurses originally told us it would happen, Jon and I found it very difficult to believe. Really? Three pounds in a month, we questioned. But Nurse Susan assured us that the NICU folks are experts at fattening up children.

Destroy and the fishies

Search - Daddy's All Star

Well, today the muppets hit five pounds. Chunksters!

This past weekend the twins graduated to Newborn size diapers. This may or may not have had anything to do with growth. Diaper size increases are usually determined by the current diapers inability to contain poop. (Prior to having children I never imagined I would care so much about bodily functions.) The new diapers are much kinder to the boys increasingly expanding tummies. Last Friday, Jon noted that Destroy was beginning to look like a football – little arms and legs, big oversize midsection.

Even more exciting is today’s development. Along with the five-pound milestone, Search and Destroy no longer fit into their adorably tiny preemie size onesies. Their wardrobe options have just increased exponentially. Destroy was clad in a standard issue hospital shirt – size 6 months – which is provided to all babies, from preemie to jumbo term size. He may as well have not been wearing anything for how big that shirt is. Search was still wearing his preemie outfit since he hadn’t yet spit up on it. But when the Nurse Susan arrived for her evening shift, she found Search squirming about with the bottom snaps not even closed. Perhaps Nurse Margaret thought he needed extra breathing room.

For outfits that were still rather loose when we first clad the muppets with them, they were awfully snug these past few days. I was a proud mommy this afternoon as I toted the larger outfits into Pod B. Granted, these new outfits are still rather roomy. But they’ll quickly grow into these too. At the rate they’ve been growing, we’ll be taking home babies that actually fit into those size 6-month standard issue shirts…

Lifestyles of the Small and Premature

Search

Destroy

For those of you familiar with the MTV show “Cribs,” please enjoy today’s installment of “Cribs: NICU” (ha ha). Please feel free to read the following with a Robin Leach English accent.

While most babies are quickly bundled into their mother’s arms and shuttled out of the hospital mere days after birth, the small and premature enjoy luxury private accommodations where teams of qualified medical staff cater to their every whim.

Think that’s impressive? Well, consider Search and Destroy Stream. Not content to live alone in a Giraffe isolette, the twins have moved into a two-person pedi crib mansion. The crib looks far more like a typical crib than any kind of hospital equipment.

The small and premature are encouraged to relax. The only work required is breathing. And even then, oxygen tubes are provided to any who want to chill out to the point of forgetting to breathe. These nasal cannulas are available 24/7. Adults are required to pay big money at trendy oxygen bars for mere minutes of the same pleasure.

Day and night, these small and premature babies adhere to a strict schedule to ensure no want goes unanswered to. Hungry? Every three hours Search and Destroy receive a bottle of milk. But not just any milk. These small and premature miracles receive two parts growth formula with every feeding. Aimed to plump them up quickly, these children are not burdened with the term babies task of taking only as much as they want. Too tired to eat? Not a problem in the NICU. Here, babies can simply lie back and experience the thrill of a full tummy via a feeding tube.

Without asking, a team of nurses make sure that the babies home is always the perfect temperature and a fresh diaper awaits their cute little tushies. Interested in furthering development? The small and premature have a developmental care coordinator who recommends a weekly plan that will make the little ones the most comfortable. In the interim, physical therapists massage their muscles and work on toning their cute little bodies. Again, something adults continue to pay thousands of dollars a year for in prosperous gyms and spas. And finally, a social worker imparts this and more information to parents to ensure the preemies comfort upon departure.

Remember Search and Destroy’s crib? These preemies are spoiled and pampered. In addition to ditching anything resembling medical supplies, the twins cuddle in personally assembled nests – swaddled in warmed blankets topped with fuzzy stuffed bear blankets. Their bedding arrangements lay atop a handmade quilt. The quilt boasts a primary red background with bright yellow chicks to stimulate the imagination. They look up at a blanket of royal blue with rubber ducks of the same bright yellow to color their dreams. Tired? Their fuzzy bear blankets are a pastel blue and green to calm them.

In honor of the giraffe isolette they left behind, a stuffed giraffe watches over the two of them. In each corner sits a turtle reminding them that slow and steady wins the race. Rattling bumblebees attached to the back of the crib entertain them should they wake up before their next feeding. Still sound mild and pedestrian? A musical jungle mobile swings above their heads – entertaining them with lions and tigers and bears, oh my!

No wonder they’re still camping out in the NICU after eight weeks. This is paradise compared to the cramped conditions in my tummy or the cold glare of the operating room where they were ripped out into the world.

Thus far their lifelong adventure has taken them down the hall of the hospital’s third floor. I can tell they’re getting more adventurous as they get older and bigger (hence the new need for the musical mobile entertainment). This tells me the muppets will be home soon – just think what adventures await them once they breech the barriers of the NICU and actually get to experience the world.

NICU Sweet NICU

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